Two days ago we received some new information about our little
Rose. It was actually old information,
but new to us. We went from being elated
to have these new glimpses into her past, to being swallowed up by a wave of
intense fear. When we first inquired
about Rose, we were immediately told that she was severely delayed, way behind other
children with Down Syndrome of the same age.
We were told that she would never be one of those children that comes
home and catches up to her peers. I
heard those discouraging words, and sat with them in the quiet of my
heart. I heard whispers of autism in the
depths of my soul. I asked God if He
truly had chosen us to be her family, because autism has been one of my biggest
fears as a parent. I will never forget
breathing a sigh of relief when our first son turned two, and then four, and finally coming out of the “danger zone” when many children are first diagnosed with autism. It’s been this deep-seated fear for so long,
and I’ve always thought that I could handle anything except that. So, when I started hearing those internal
whispers of autism with Rose, I felt an indescribable sense of panic and fear. But we said yes amidst those concerns.
We knew without a shadow of any doubt that God was asking us to trust
Him, and to say yes to even “the least
of these.”
In May, we received an update from China, with one short
little video of Rose. In the video, she
rolled over from her back to her tummy (a new accomplishment at 27 months old),
she reached for and interacted with a toy, and for the briefest of seconds she
smiled. I cried when I saw that little
tiny smile. It was like a heavy weight
was lifted off my chest, and I knew that no matter what, I could handle
whatever needs she might have. I saw a
tiny little glimpse of joy living within her, and that was all that mattered.
And then, two nights ago, we received some old videos of Rose. They are much longer than any of the newer
ones we have. I was first struck by how
unbelievably precious she was. Oh my goodness,
she was such a CUTE little baby!! But
then I was struck by how lifeless her little eyes looked. They are like two beautiful brown wells of
deep, deep loss. Like her little spirit
is in there somewhere, but it’s lost in some kind of murky darkness. It’s hard to find the right words. It’s just like she is lost. She doesn’t respond to her nannies as they
try to call her name, get her attention, play with her, give her toys, love on
her. They do care for her, you can see
it. But she just looks empty. Those whispers of autism came back, much louder
than before. And the wave of fear became
impossible to overcome. All I could do was
ask God, “What do we do?” We can handle
anything. Anything but this. Not this.
I had heard other women talk about the intense grief they
felt when they were told their unborn baby would have Down Syndrome. They would say that they grieved for the child
they thought they were going to have, the life that child would lead, the milestones
they would reach. It was hard for me to
completely understand their grief, because I know that Down Syndrome is not a
death sentence. I see that extra chromosome as an extra measure of God's mysterious but wonderful blessings. So to me, their diagnosis just meant that
their child would be different than what they had originally thought…not less, or
worse. Two nights ago I felt their grief. I now know their pain. I get it.
Seeing how incredibly “different” Rose is from other children her age, even those with Down Syndrome, shook me to my core.
She isn’t the happy, bubbly, playful little girl that some of her peers
are. She isn’t just developmentally slow. She isn't just cognitively delayed. It’s more than that. Much more.
After sitting with the grief, the loss, the pain, and the
overwhelming fear of not being enough for Rose, I was finally able to utter
those words to God, “What do we do?” And He answered. Immediately.
Indisputably. He whispered into my
spirit, “You go get her, Mama. You love
her with the fierceness that only a mother can.
She’s yours, and you are hers.
She needs you, and you need her.
She is beautifully and wonderfully made by Me. Go get her.”
With those words, the Mama Bear inside of me raised its head and roared
so loudly I wouldn’t be able to silence it if I tried. I
felt more in love with her than ever before; more determined to get to her as
quickly as possible; more convinced that she is ours and we are hers than I
ever imagined. The fear and sadness are
still there, but they are tempered by God’s Love and Grace. My heart is broken by what she has endured
for two and a half years, the impact that it has had on her, the loss of what
could have been. But that is part of the
story that God is writing. It’s all part
of His greater plan. And to Him be all
the glory.
No, we don’t know if Rose has autism. It’s just a suspicion. We won’t know anything until we have her
home, get through the initial transition, and start with medical and therapeutic
assessments. Even then it will likely
take quite a long time to see the real Rose emerge...to see Our Rose In Bloom. Either way, she is beautiful, made in her Father's image, crafted by His hands.
We ask you all to pray for Rose in the coming months--that
her nannies would continue to care for her to the best of their ability, and
show her compassion despite her challenges.
That she would know Love, before she knows the love of a mother and
father. That she would find Joy, before
she experiences the joy of a family.
That she would have Peace, before she knows the peace and security of a
safe and loving home. And that God would
prepare us in any and every way necessary to be her Mama and Daddy.
With much love,
Ashley
Wow. What a story. People like you and David makes one think that maybe there is hope for the world after all.
ReplyDeleteThank you for your encouraging words, Charlie! We can't wait to get our girl home!
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